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Click to Watch the Video

Learning and Leaning In by Dr. Pelak

This was our first In-Person Meeting since the Pandemic. We have a lot to learn on how to make the In-Person/Hybrid conference work best and would love to get your opinions on how we can make this better. At our next In-Person/Hybrid, we will have a better sense on how the cameras work, when to have the video on the speaker and when to turn the video to the audience.

Unfortunately, the recording did not begin until about 5 minutes into the meeting, and we apologize for that, but we hope you enjoy listening to Dr. Pelak's take on "Learning and Leaning In".

 

Struggles with the Use of Technology in PCA - Part 1

 

   David Simpson, OD
   Optometry, Low Vision Specialist
   UCHealth Sue Anschutz-Rodgers Eye Center
   Anschutz Medical Campus

   Along with Dr. Victoria Pelak and our IT
   Specialist, Joe Kripas

 

Click  for Video

Dr. Richard S. Isaacson is a Preventive Neurologist who conducts clinical and translational research at the Institute for Neurodegenerative Diseases in Florida and presented a webinar to our group on Healthy Brain Aging 

 

Q&A with Dr. Pelak

 

All questions that were asked during registration are recorded on this "Q&A with Dr. Pelak", however, once it was opened up for our guests, we stopped the recording due to the confidential nature of PCA and to protect our guests.

Registration Questions answered by Dr. Pelak and group discussion with Christine Morrisey, BS - Part 2

Christine Morrisey, BS is a volunteer with the Massachusetts/New Hampshire Alzheimer's Association Chapter who facilitated a support group discussion for people with Posterior Cortical Atrophy, their families, friends, and care partners.

During Q&A with Ms. Morrisey & guests, the video was paused due to the confidential nature of PCA and to protect our guests. All questions that were asked during registration were answered by Dr. Pelak in the video and a handout, which will include topics discussed during Q&A, will be sent to the group once complete. 

Victoria Pelak, MD & Christine Morrisey, BS

Â鶹´«Ã½¸ßÇå PCA Support Group Meeting: Topic - Open Forum (Traditional Support Group Format)

 

 

 

 

 

Christine Morrisey, BS is a volunteer with the Massachusetts/New Hampshire Alzheimer's Association Chapter who facilitated a support group discussion for people with Posterior Cortical Atrophy, their families, friends, and care partners.

During Q&A with Ms. Morrisey & guests, the video was paused due to the confidential nature of PCA and to protect our guests. All questions that were asked during registration were answered by Dr. Pelak in the video. If you would like a copy of the handout that was sent to the group after the meeting, please contact Jerri Lusk at copca@cuanschutz.edu and she will email you a copy. Thank you - CO PCA Support

Update On Research by Victoria Pelak, MD

At our Â鶹´«Ã½¸ßÇå PCA Support Group on this day, it was a special day to honor the decade of service the PCA support group has provided to the PCA community.

Dr. Pelak recognized donors and gave a special thank you to the family of a founding member. In addition, Dr. Pelak provided updates in the field and discussed ongoing research at the University of Â鶹´«Ã½¸ßÇå.

Afterwards, there were questions and answers amongst the group.

 

 

 

 

 

 

 

Liana G. Apostolova, MD, Indiana University School of Medicine

 

 

 

 

 

 

 

 

 

PowerPoint Presentation by Mr. Todd Ballantine, wife Marianne Ballantine, and Mr. Ralph Patrick with the Alzheimer’s Association of the Greater Boulder Region : Living With Posterior Cortical Atrophy Means: Positive Change Attitude

GUEST SPEAKERS

 

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David Lewerenz, OD, Optometry, Low Vision Rehabilitation, Department of Ophthalmology – University of Â鶹´«Ã½¸ßÇå School of Medicine

Dr. Lewerenz specializes in low vision rehabilitation, which provides assistance for patients who have lost vision from an eye or brain condition or injury. This type of visual impairment cannot be corrected by conventional glasses, contact lenses, medicine or surgery. His goal, working together with trained occupational therapists and other community resources, is to provide strategies that make it possible for his patients to accomplish the tasks that are important to them, thereby allowing them to live as independently as possible.

Dr. Lewerenz joined us to go over technologies that he uses in his practice that will be helpful in the day-to-day living of those living with PCA.

Dr. David Lewerenz presented Vision-To-Speech Technology for Posterior Cortical Atrophy – Click Below To View the Presentation:

Vision To Speech Technology

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Audrey Krebs, Assisted Living Administration, Community Relations, Program Management – Get Along Gadgets

Audrey Krebs is certified as a Senior Advisor. Audrey’s passion is serving older adults, having spent the last twenty years in service. Her goal is to empower older adults giving them the tools and education to enhance the quality of their life and that is how Get-Along Gadgets was developed. Ms. Krebs, along with Ms. Beems, joined us to present their “Get-Along Gadgets” to help in the day-to-day living of those living with PCA.

 Julia Beems, MA, Senior Instructor, Assistive Technology Program Outreach Coordinator, Emergency Preparedness Program Coordinator with Assistive Technology Partners, College of Engineering and Applied Sciences, Department of Bioengineering – University of Â鶹´«Ã½¸ßÇå Denver and Anschutz Medical Campus

Ms. Beems trained as a horticultural therapist and rehabilitation counselor/vocational evaluator. She has worked in the field of assistive technology for over 30 years providing assessments, technical assistance, and training to individuals with disabilities, their family members, and the professionals who serve them. Ms. Beems’ current responsibilities include providing outreach services across Â鶹´«Ã½¸ßÇå to individuals with disabilities and their family members; professionals from educational, employment, healthcare, and emergency response agencies who work with them; policymakers and legislators; and the general public.

Her areas of expertise include low-tech, low-cost assistive technology solutions, emergency preparedness, and modifications for the rural and agricultural communities. Ms. Beems represents ATP as a member of the North Central Region Functional Needs Steering Committee, the state Community Preparedness Advisory Council, and the Â鶹´«Ã½¸ßÇå Advisory Committee for Persons with Disabilities. She has been recognized by the American Horticultural Therapy Association for Humanitarian Service and by AARP as an Outstanding Community Partner.

Audrey Krebs and Julia Beems presented Get-Along Gadgets and brought many of the “gadgets” with them to pass around. Below are links to all of these amazing gadgets and a few informational links as well.

Get-Along Gadgets

AT Funding Source & AT Finder

Assistive Technology - Devices to Make Your Life Easier

We hope you enjoy previewing all of these amazing gadgets and the wonderful technology that is available now, and we hope it makes your life a little easier and a lot more gratifying.

 

Presented by Victoria Pelak, MD.

You can also view this and other lectures on Jamie Talan’s  PCA Lecture Series

Palliative Care and Neurology: Time for a Paradigm Shift